The popularity of the onsite course is due to a combination of expert tuition, well designed group learning and sensitivity to individual needs of the delegates.
The course runs over five full days and includes lectures, group work and workshops run by experts in the field. At the end of five days delegates will have enhanced confidence in the care they provide for patients with CF – children or adults.
"The whole week was well presented and very well constructed, I particularly enjoyed the high-quality speakers / presentations and the interactive sessions."
September 2016
"I can't remember enjoying a course so much. The experience has been invaluable for my practice and I will definitely be recommending it to colleagues."
March 2015
"A great format of case studies, discussion and sharing experiences. It was inspiring to see so many clinicians passionate about their work and their drive for better care."
March 2016
"What an amazing course, inspirational and interesting. Will take new ideas back to improve the provision of care we provide, Thank you"
March 2019
"Excellent course – I thoroughly enjoyed it and feel it's a very comprehensive and well-run course"
September 2019
Speakers are experts in their areas both nationally and internationally.
Faculty are from:
Dr Saji Alexander is a Paediatric Diabetologist with an interest in paediatric endocrinology. Dr Alexander carried out his undergraduate training at Christian Medical School Vellore, India. He completed his postgraduate paediatric training in London. Dr Alexander jointly runs a bone marrow transplant endocrine late-effects clinic at St Mary’s Hospital as well as a CF related diabetes clinic at Royal Brompton Hospital. He is involved in audit and research activity based around his clinical work.
Dr Ian Balfour-Lynn has been a paediatric respiratory consultant at the Royal Brompton Hospital, London since 1997. He is the Director of Paediatric Cystic Fibrosis. He is Chair of the Cystic Fibrosis Group of European Respiratory Society, and the Paediatric CF representative on the Specialised Medicine CRG.
Dr Benden completed his paediatric training in Hannover and London. Dr Benden is a Member of the Board of Directors of the International Society for Heart and Lung Transplantation (ISHLT), and a former Chair of the ISHLT Scientific Council on Paediatric Transplantation. He is Associated Editor of "Pediatric Transplantation” and Editorial Board Consultant of “Journal of Heart and Lung Transplantation”. Dr Benden's research interests include clinical aspects of lung transplantation, particularly in children and adolescents, experimental aspects of chronic lung allograft dysfunction, and cystic fibrosis lung disease.
Zelda Beverley did her MSc in Physiotherapy at the University of Southampton after a BSc in Exercise and Sports Science at The University of Exeter. Zelda has been in working at the Royal Brompton Hospital in Cystic Fibrosis since 2010. She has a specialist interest in exercise, physical activity and non-invasive ventilation. Zelda has also completed post-graduate modules on leadership in healthcare and exercise in health and disease.
Dr Nicola Bridges is a paediatric endocrinologist based at Chelsea and Westminster Hospital, London, and also works at the Royal Brompton Hospital and St Mary’s Hospital. She looks after children and adolescents with CF-related diabetes at the Royal Brompton, and is also closely involved in the care of adult patients with CF-related diabetes. At Chelsea and Westminster Hospital she is part of the diabetes team, and covers a wide range of paediatric endocrine disorders, with a special interest in puberty and Prader Willi syndrome.
Mark Butler is the Lead Clinical Nurse Specialist at the London Chest Hospital. Mark graduated as a nurse in 1995 and began working in the area of CF in 1999. He has a specific interest in transition and sexual health issues in CF. Mark has lectured on the course for many years.
Dr Amanda Brennan is a consultant in respiratory medicine with a specialist interest in cystic fibrosis. She spent three years as a research fellow at St George’s Hospital and The Royal Brompton Hospital researching the effect of cystic fibrosis-related diabetes on respiratory disease and was awarded a PhD. She was granted a CF Trust Clinical Fellowship in 2006, which she carried out at the Manchester Adult Cystic Fibrosis Centre, becoming a consultant there in 2009. She has published on aspects of cystic fibrosis-related diabetes and has been invited to speak both nationally and internationally. Her areas of interest include cystic fibrosis-related diabetes and pregnancy.
Dr Mandy Bryon is a consultant clinical psychologist and Joint Head of the paediatric psychology and play services at Great Ormond Street Hospital for Children, London. She lectures extensively on psychosocial aspects of childhood illness, particularly CF, to professional and parent audiences. Dr Bryon co-founded the UK Psychosocial Professionals in Cystic Fibrosis Group and currently organises the International Psychosocial Special Interest Group for the European Cystic Fibrosis Society. Dr Bryon has researched in many areas of the psychological impact of childhood illness, particularly sibling relationships, adherence to treatment, attachment, eating disorders and body image disturbance in CF.
Dr Siobhán Carr is a consultant in paediatric respiratory medicine at Royal Brompton Hospital. Dr Carr undertook the majority of her paediatric respiratory training at Great Ormond Street Hospital for Children with some time spent in Sydney, Australia. She worked as the Paediatric CF Centre Director at The Royal London Children’s Hospital for over 14 years before moving to the Royal Brompton Hospital. Her areas of expertise are primary ciliary dyskinesia, cystic fibrosis, non-CF bronchiectasis and immunodeficiency. Dr Carr has presented to national and international audiences at CF conferences for many years and been involved in CF research.
Fiona Cathcart graduated from the University of East Anglia and then completed a Master’s degree in advanced cardiorespiratory physiotherapy at the University of Herefordshire. Fiona has been developing her expertise in CF since joining the Royal Brompton Hospital in 2010. Her special interests include medicines for inhalation, non-invasive ventilation and end of life care. Fiona, in partnership with Dr Madge developed an advanced care planning document for adults with CF which is available on the CF Trust website. She was an author on the ACPCF/CF Trust standards of care and good clinical practice for physiotherapy.
Marie Creedon qualified as a dietitian in 1997 from the University of Surrey. For the past 12 years Marie has worked at Great Ormond Street Hospital for Children, London and has a wide range of experience in paediatric nutrition. Marie has been the Principal Respiratory Paediatric Dietitian for 9 years, a role which specialises in the nutritional care of 180 children attending Great Ormond Street Hospital for their cystic fibrosis care. Marie is a member of the UK Cystic Fibrosis interest group and the European Cystic Fibrosis Nutrition Group and is also active in audit, research and lecturing on her specialist subject both nationally and internationally.
Jane Davies is Professor of Paediatric Respirology and Experimental Medicine at Imperial College, London and Honorary Consultant at the Royal Brompton Hospital. Prof Davies has a major interest in airway infection and early airway inflammation, leading a CF Trust Strategic Research Centre on Pseudomonas aeruginosa, as part of which collaborators are researching novel detection methods suitable for young, non-expectorating patients. She also co-leads the site at the ECFS Clinical Trial Network. She has also been working on the standardisation of lung clearance index, a sensitive measure of pulmonary health in early disease.
Dr Imogen Felton works as a Consultant in Respiratory Medicine and Adult Cystic Fibrosis (CF) at Royal Brompton Hospital, London UK, with particular interest in CFTR-related disorders, including complications relating to CF-fungal infection and CF-related diabetes. In 2019, she was awarded a PhD in respiratory and genomic medicine at Imperial College, investigating the fungal respiratory mycobiome in adult CF and non-CF bronchiectasis. She completed her post-graduate specialist training with the CF Trust Fellowship award, working in CF centres in the UK and in the USA.
Elaine Gunn is the UK CF Registry Manager for the Cystic Fibrosis Trust. Elaine trained as a registered nurse and specialised in cardiothoracic surgical and respiratory nursing and worked at Wythenshawe Hospital Manchester Cardiothoracic Department as a senior sister. In 1987 she became involved in adult Cystic Fibrosis research. Moving to Papworth Hospital in 1994 taking the post of Cystic Fibrosis Database and Research Manager. In 2007 she left the NHS to work for the CF Trust as Registry Manager. Elaine is a member of the European CF Society Data Quality Management Group and European Medicine Agency Pharmacovigilance Working Groups.
Louisa Hill is the Team Lead for Cardiorespiratory Physiotherapy at Great Ormond Street Hospital for Children (GOSH). Louisa graduated in 2000 from Manchester University and first started working at Wythenshawe Hospital, Manchester. Following this Louisa worked at Starship Hospital, Auckland, New Zealand where her interest in paediatric CF began. Louisa has now worked at GOSH for many years as the Specialist Paediatric CF physiotherapist. Her areas of clinical interest include treatment of the asymptomatic child, the role of non-invasive ventilation in CF and independent non-medical prescribing.
Dr Andrew Jones was appointed as a consultant in respiratory medicine and as a CF specialist at the Royal Brompton Hospital in 2013. His research interests include the pathogenesis of lung infection in CF patients, bacterial diversity and communication systems and the treatment of non-tuberculous mycobacteria.
Catherine Lambert has been a Cystic Fibrosis Clinical Nurse Specialist at the Royal London Hospital since 2005. Cath graduated as a paediatric nurse working on a respiratory ward at the Royal London Hospital and took a keen interest in CF. Since appointed as CF CNS she has been working at improving transitional care for adolescents with CF and well as promoting good communication between patients and staff. Cath has lectured jointly with Mark Butler on the course.
Dr Susan Madge is the Director of the Adult CF Centre and a consultant curse at the Royal Brompton Hospital. She is both adult and paediatric trained and has worked with children and adults with CF since 1984. Following a Master’s degree, Susan completed a PhD at University College, London. Her areas of interest and research include adolescence, fertility and pregnancy, quality of life and end of life issues. She is involved nationally and internationally in various aspects of CF care.
Eleanor Willcox qualified as a registered dietitian in 2012 and has been working in the area of CF since 2014. Eleanor has worked at the Royal Brompton Hospital as a since July 2016 as a specialist CF dietitian. Eleanor is a member of the UK Cystic Fibrosis interested group, and regularly attends meetings.
Daniel Office has been working with people with cystic fibrosis since 2010 and is currently a cystic fibrosis clinical nurse specialist at the Royal Brompton Hospital in London. His areas of interest include adolescent and adult CF issues, eating disorders and transition. He has co-ordinated the largest cystic fibrosis transition service in Europe since 2017 and has spoken internationally on this subject.
Dr Chris Orchard is CF and respiratory medicine consultant working at Frimley Park Hospital. He qualified form St Georges medical School and trained in North West London in respiratory medicine. He was a research fellow for two years at the Royal Brompton Hospital. He has been a consultant since 2014 and as well as his interest in CF he is clinical lead for the HDU and infection control.
Dr Kinesh Patel is a consultant gastroenterologist at the Royal Brompton Hospital, London. He qualified from Imperial College London in 2004 with distinction and subsequently undertook postgraduate specialist training in north-west London. In 2016, he was appointed jointly as a consultant in gastroenterology at Chelsea and Westminster Hospital and the Royal Brompton Hospital.
Prof Marijke Proesmans is a consultant in Paediatric Pulmonology at the University Hospital of Leuven, Belgium and associate Professor at the faculty of Medicine of the same institution. Professor Proesmans received her degree in medicine at the university of Leuven. Since 1999 Professor Proesmans has worked as a consultant in the department of Paediatrics of the university hospital in Leuven, a large tertiary referral and teaching hospital. Her clinical expertise covers most fields of Paediatric Pulmonology including asthma, lung infections, CF, primary ciliary dyskinesia, congenital lung malformation and non-invasive ventilation. Her research activities and publications are mostly clinical oriented with a strong focus on CF.
Dr Thomas Semple is a consultant cardiothoracic and paediatric radiologist at The Royal Brompton Hospital. Dr Semple completed his radiology training on the University College London training scheme before undertaking an academic fellowship at The Royal Brompton under the supervision of Professors Padley, Hogg and Davies. Working in close collaboration with Dr Catherine Owens at Great Ormond Street Hospital, Dr Semple’s clinical and research interests include childhood interstitial lung disease imaging, ventilation and pulmonary perfusion MRI, neonatal respiratory-gated CT and implementation and optimization of paediatric cardiac CT – particularly for neonatal coronary imaging.
Dr Nicholas Simmonds graduated in medicine from the University of Nottingham and subsequently gained a doctorate from Imperial College, London. His thesis topic was long-term survival in CF which included CFTR function variability and environmental (non-genetic) factors. He was appointed as Consultant Respiratory Physician and CF Specialist at the Royal Brompton Hospital in 2010 and also holds an Honorary Senior Lecturer position with Imperial College. His main specialist interest is the diagnosis of CF in equivocal or atypical cases. He has extensive experience of nasal potential difference measurement and is a member of the European Diagnostic Network Working Group.
Susan Talbot worked in the Royal Brompton Hospital for 14 years in numerous areas of Respiratory medicine. In 2011 she took a post as a Clinical Nurse Specialist in CF at the Brompton which she loved, developing a special interest and expertise in quality improvement. In 2016 she moved back to her home town in Ireland and is currently a Clinical Nurse Specialist in CF/post Lung Transplant in the Mater Misericordia hospital in Dublin City.
Mr Guy Thorpe-Beeston is a consultant obstetrician and gynaecologist at the Chelsea and Westminster Hospital, London, and has an honorary consultant appointment at the Royal Brompton Hospital. He qualified from Cambridge University and subsequently subspecialised in fetal medicine. He has a specialist interest in high-risk pregnancies and co-ordinates the obstetric care of women with CF.
Dr Mike Waller is a consultant in respiratory medicine at Kings College Hospital, London. He was awarded a PhD by Imperial College London for his thesis ‘The behaviour of the cystic fibrosis respiratory epithelium and its response to multidose CFTR gene therapy’. During his research he worked on a landmark CF gene therapy trial and developed an interest in the electrophysiology of the CF airway using nasal potential difference measurement. He was subsequently appointed as a CF Trust senior clinical fellow at the Royal Brompton Hospital, before completing his specialty respiratory training.
Dr Colin Wallis is a consultant paediatrician in paediatric respiratory medicine at Great Ormond Street Hospital for Children (GOSH). Dr Wallis has a specific interest in the care and management of children with chronic lung disease, in particular CF, and the child with long-term ventilatory needs, and is the respiratory representative on the GOSH NSCAG tracheal service. He has also been awarded funding to evaluate the early changes in CF lung disease from the CF Trust together with researchers at the Institute of Child Health.
Dr Paul Weldon works as a Clinical Psychologist at the Royal Brompton Hospital, specialising in cystic fibrosis. Prior to this appointment he worked within the heart and lung transplant service at Harefield Hospital. Dr Weldon has expertise in the psychological adjustment to long-term health conditions and has a special interest in resilience.
Dr Whitehouse is a Consultant Hepatologist at Chelsea and Westminster Hospital. He trained in General Internal Medicine and Gastroenterology in London and completed subspecialty Hepatology training at the Institute of Liver Studies, King’s College Hospital in transplant hepatology and Liver Intensive Care. His post graduate research focused on tolerance induction strategies and immunosuppression withdrawal in liver transplantation and he was a co-investigator for the ThRIL study investigating a regulatory T cell therapy in liver transplant recipients.
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