Welcome to our internationally recognised multidisciplinary course, which presents up-to-date evidence-based information on paediatric and adult management of Cystic Fibrosis (CF). Choose to attend our onsite course in central London or learn from anywhere in the world with our online course.

Learn onsite

he onsite course takes place in London twice a year, and aims to give delegates an enhanced confidence in the care of children and adults with CF. Over five days, delegates will learn via lectures, group work and workshops run by an international cohort of experts in the field.

Learn online

Since 2012, practitioners all over the world have taken the online course, many of whom benefit from learning at their own pace in a remote setting. The content on the online learning portal replicates the onsite course themes with easily-digestible work modules.

Meet the team

 

Liz Holder,
Course Administrator

Liz trained at St Thomas Hospital (London) as a Registered General Nurse. She worked at both the Royal Marsden and Royal Brompton Hospitals for many years. Her role at the Royal Brompton latterly was as a CF clinical nurse specialist with an interest in home care. She helped set up the home care service for both children and adults with CF. Since leaving clinical work 10 years ago she has been involved in the administration of this course.

lizholder@CFcourse.co.uk

 

Su Madge,
Course leader

Susan is an Associate Director of Adult CF and a consultant nurse at the Royal Brompton Hospital. She is both adult and paediatric trained and has worked with children and adults with CF since 1984. Following a Master’s degree, Susan completed a PhD at University College, London. Her areas of interest and research include adolescence, fertility and pregnancy, quality of life and end of life issues. She is involved nationally and internationally in various aspects of CF care.

s.madge@rbht.nhs.uk

 

Penny Agent,
Course Facilitator

Penny has worked at the Royal Brompton Hospital since 1996 and is Director of Rehabilitation & Therapies and Laboratory Medicine. Her specialist interests in CF include complex disease, NIV, end of life care and airway clearance. Penny has lectured extensively both nationally and internationally.

p.agent@rbht.nhs.uk

About the course

Professional relevance
The course supports a number of consensus guidelines and standards of care including:

  • Clinical Care of Children and Adults with CF in the UK (CF Trust, 2011)
  • Standards of Care for Patients with (European CF Society, 2014)
  • National Health Service – England, National Definition Set for CF (UK Department of Health, 2013)

 

Preparation
We do not recommend any particular pre-course reading as the literature changes very quickly. However, please familiarise yourself with up-to-date articles in all areas. There are some useful websites listed below – look at the publication pages of these sites. We also provide a detailed course manual at the beginning of the course.

CF Trust (UK) www.cysticfibrosis.org.uk
CF Foundation (USA) www.cff.org
European CF Society www.ecfs.eu

 

Travel grants
There are a small number of travel grants available to delegates travelling from outside the UK each year. These pay for travel to London and accommodation only. Please contact Susan Madge or Elisabeth Holder to check availability.

Contact

If you have any questions about the course or the registration process, please get in touch.

Liz Holder, Course Administrator
6 Annandale Drive, Lower Bourne, Farnham, Surrey GU10 3JD
lizholder@CFcourse.co.uk