Learn onsite

The popularity of the onsite course is due to a combination of expert tuition, well designed group learning and sensitivity to individual needs of the delegates.

The course runs over five full days and includes lectures, group work and workshops run by experts in the field. At the end of five days delegates will have enhanced confidence in the care they provide for patients with CF – children or adults.

  • The course is held twice a year in spring and autumn and runs Monday to Friday, 9am to 5.10pm.
  • The fee includes the course manual and morning and afternoon refreshments.
  • The course is run in English and delegates from other countries are most welcome to attend.
  • Delegates must have at least one year of experience working in cystic fibrosis.
  • Delegates are responsible for arranging their own accommodation; there is a wide variety of accommodation available near the course venue of various prices.

The next dates for the onsite courses are:

5th–9th March 2018
1st–5th October 2018

"I can’t remember enjoying a course so much. The experience has been invaluable for my practice and I will definitely be recommending it to colleagues."

March 2015

"A great format of case studies, discussion and sharing experiences. It was inspiring to see so many clinicians passionate about their work and their drive for better care."

March 2016

"The whole week was well presented and very well constructed, I particularly enjoyed the high quality speakers / presentations and the interactive sessions."

September 2016

Faculty

Speakers are experts in their areas both nationally and internationally.

Faculty are from:

  • The Royal Brompton Hospital, London, UK
  • Chelsea and Westminster Hospital, London, UK
  • Barts Health (The Royal London Hospital and St Bartholomew’s Hospital), London, UK
  • Great Ormond Street Hospital for Children, London, UK
  • Kings College Hospital, London, UK
  • The Royal Liverpool and Broadgreen University Hospital, Liverpool, UK
  • University Hospital, Zurich, Switzerland
  • University Hospital, Leuven, Belgium
  • Mater Misericordiae University Hospital, Dublin, Ireland

 

Current Speakers

Penny Agent

Penny has worked at the Royal Brompton Hospital since 1996 and is Director of Rehabilitation & Therapies and Laboratory Medicine. Her specialist interests in CF include complex disease, NIV, end of life care and airway clearance. Penny has lectured extensively both nationally and internationally. Penny is co-editing the revision of the national ‘Clinical Guidelines for the Physiotherapy Management of CF’.

Saji Alexander

Dr Saji Alexander is a Paediatric Diabetologist and has a major interest in paediatric endocrinology. Saji carried out his undergraduate training at Christian Medical School Vellore India. He completed his postgraduate paediatric training in London. Saji jointly runs a bone marrow transplant endocrine late-effects clinic at St Mary’s Hospital as well as a CF related diabetes clinic at Royal Brompton Hospital. He is involved in audit and research activity based around his clinical work.

Ian Balfour-Lynn

Dr Ian Balfour-Lynn has been a paediatric respiratory consultant at the Royal Brompton Hospital, London since 1997. He is their Director of Paediatric Cystic Fibrosis. He is Chair of the Cystic Fibrosis Group of European Respiratory Society, and the Paediatric CF representative on the Specialised Medicine CRG.

Christian Benden

Dr Christian Benden is the Medical Director of Lung Transplantation at the University Hospital Zurich and a Reader in Respiratory and Transplant Medicine at the University of Zurich, Switzerland. Dr Benden completed his paediatric training in Hannover and London. Dr Benden is a Member of the Board of Directors of the International Society for Heart and Lung Transplantation (ISHLT), and a former Chair of the ISHLT Scientific Council on Paediatric Transplantation. He is Associated Editor of "Pediatric Transplantation” and Editorial Board Consultant of “Journal of Heart and Lung Transplantation”. Dr Benden's research interests include clinical aspects of lung transplantation, particularly in children and adolescents, experimental aspects of chronic lung allograft dysfunction, and cystic fibrosis lung disease.

Zelda Beverley

Zelda did her MSc in Physiotherapy at the University of Southampton after a BSc in Exercise and Sports Science at The University of Exeter. Zelda has been in working at the Royal Brompton Hospital in Cystic Fibrosis for 6 years. She has a specialist interest in exercise, physical activity and non-invasive ventilation. Zelda has also completed post-graduate modules on leadership in healthcare and exercise in health and disease.

Nicola Bridges

Dr Nicola Bridges is a paediatric endocrinologist based at Chelsea and Westminster Hospital, London, and also works at the Royal Brompton Hospital and St Mary’s Hospital. She looks after children and adolescents with CF-related diabetes at the Royal Brompton, and is also closely involved in the care of adult patients with CF-related diabetes. At Chelsea and Westminster Hospital she is part of the diabetes team, and covers a wide range of paediatric endocrine disorders, with a special interest in puberty and Prader Willi syndrome.

Mark Butler

Mark Butler is Clinical Nurse Specialist at the London Chest Hospital. Mark graduated as a nurse in 1995 and began working in the area of cystic fibrosis in 1999. He has a specific interest in transition and sexual health issues in cystic fibrosis. Mark has lectured on the course for many years.

Mandy Bryon

Dr Mandy Bryon is a consultant clinical psychologist and Joint Head of the paediatric psychology and play services at Great Ormond Street Hospital for Children, London. Mandy has worked as the psychologist for the cystic fibrosis team since February 1990. She lectures extensively within the UK on psychosocial aspects of childhood illness, particularly cystic fibrosis, to professional and parent audiences. Mandy co-founded the UK Psychosocial Professionals in Cystic Fibrosis Group and currently organises the International Psychosocial Special Interest Group for the European Cystic Fibrosis Society. Mandy has researched in many areas of the psychological impact of childhood illness, particularly sibling relationships, adherence to treatment, attachment, eating disorders and body image disturbance in cystic fibrosis.

Siobhán Carr

Dr Siobhán Carr is a consultant in paediatric respiratory medicine at Royal Brompton Hospital. Siobhan graduated from St Bartholomew’s Hospital Medical School in 1988, she undertook the majority of her paediatric respiratory training at Great Ormond Street Children’s Hospital with some time spent in Sydney, Australia. She worked as the Paediatric CF Centre Director at The Royal London Children’s Hospital for over 14 years before moving to The Brompton. Since May 2013 she has worked as Consultant in Paediatric Respiratory Medicine at The Royal Brompton Hospital. Her areas of expertise are Primary ciliary dyskinesia, Cystic Fibrosis, Non-CF bronchiectasis and immunodeficiency. Siobhán has presented to national and international audiences at Cystic fibrosis conferences for many years and been involved in cystic fibrosis research.

Fiona Cathcart

Fiona Cathcart graduated from the University of East Anglia in 2007 and then completed a Masters degree in advanced cardiorespiratory physiotherapy at the University of Herefordshire in 2015. Fiona has been developing her expertise in cystic fibrosis since joining the Royal Brompton Hospital in 2010. Her special interests include medicines for inhalation, non-invasive ventilation and end of life care. Fiona recently developed an advanced care planning document for adults with CF which is now available on the CF Trust website. She was also an author on the recent ACPCF/CF Trust standards of care and good clinical practice for the physiotherapy

Jane Davies

Jane Davies is Professor of Paediatric Respirology & Experimental Medicine at Imperial College, London and Honorary Consultant at the Royal Brompton Hospital. Jane has a major interest in airway infection and early airway inflammation, leading a CF Trust Strategic Research Centre on Pseudomonas aeruginosa, as part of which collaborators are researching novel detection methods suitable for young, non-expectorating patients. She co-leads the site at the ECFS Clinical Trial Network through which they are engaged in many trials in the current pipeline. In an effort to accelerate the inclusion of younger children in trials once safe and effective agents are identified, she has been working on the standardisation of lung clearance index, a sensitive measure of pulmonary health in early disease.

Stuart Elborn

Stuart Elborn is Professor of Respiratory Medicine at Imperial College London, and Director of the Adult CF Centre, Royal Brompton Hospital and Professor of Respiratory Medicine at Queen’s University Belfast. His clinical and research interests are in cystic fibrosis and bronchiectasis. His research group is focused on identifying new targets and diagnostics in suppurative lung disease developing better therapies for treating the underlying defects in cystic fibrosis and bronchiectasis.

Elaine Gunn

Elaine Gunn is the UK CF Registry Manager for the Cystic Fibrosis Trust. Elaine trained as a registered nurse in 1977 and specialised in cardiothoracic surgical and respiratory nursing and worked at Wythenshawe Hospital Manchester cardiothoracic Department as a senior sister. In 1987 she became involved in adult Cystic Fibrosis research. Moving to Papworth Hospital in 1994 taking the post of Cystic Fibrosis Database and Research Manager. In 2007 she left the NHS to work for the CF Trust as Registry Manager. Elaine is a member of the European CF Society Data Quality Management Group and European Medicine Agency Pharmavocigilance Working Groups.

Louisa Hill

Louisa is the Team Lead for Cardiorespiratory Physiotherapy at Great Ormond Street Hospital for Children (GOSH). Louisa graduated in 2000 from Manchester University and first started working at Wythenshawe Hospital, Manchester. Following this Louisa then worked at Starship Hospital, Auckland, New Zealand where her interest in paediatric CF began. Louisa has now worked at GOSH for over 10 years as the Specialist Paediatric CF physiotherapist. Her areas of clinical interest include treatment of the asymptomatic child, the role of non-invasive ventilation in CF and independent non-medical prescribing.

Andrew Jones

Dr Andrew Jones was appointed as a consultant in respiratory medicine and as a CF specialist at the Royal Brompton Hospital in 2013. His research interests include the pathogenesis of lung infection in CF patients, bacterial diversity and communication systems and the treatment of non-tuberculous mycobacteria”.

Suzie Kenny

Suzie has 10 years of experience in dietetics and worked as a Dietitian at Southampton General for several years before taking a years’ career break to travel around Canada. On her return she moved to London to follow her true passion in paediatrics and joined The Royal Brompton Hospital in 2012. Suzie is now the Professional Lead in a team of 6 dieticians. She is a specialist in respiratory medicine, her main interest being Cystic Fibrosis. Suzie has submitted posters and presented a case study at both the European and North American Cystic Fibrosis conferences as well as training and presenting with the team in several European CF centres such as Lithuania, Greece and Russia.

Catherine Lambert

Catherine Lambert has been a Cystic Fibrosis Clinical Nurse Specialist at the Royal London Hospital since 2005. Cath graduated in 1998 as a paediatric nurse working on a respiratory ward at the Royal London Hospital and took a keen interest in Cystic Fibrosis. Since appointed as CF CNS she has been working at improving transitional care for adolescents with Cystic Fibrosis and well as promoting good communication between patients and staff. Cath has lectured jointly with Mark Butler on the course on sexual Issues of young adults.

Christopher Orchard

Chris Orchard is CF and respiratory medicine consultant working at Frimley Park Hospital. He qualified form St Georges medical School in 2001 and trained in North West London in respiratory medicine. He was a research fellow for 2 years at the Royal Brompton Hospital. He has been a consultant since 2014 and as well as his interest in CF he is clinical lead for the HDU and infection control.

Catherine Owens

Catherine Lambert has been a Cystic Fibrosis Clinical Nurse Specialist at the Royal London Hospital since 2005. Cath graduated in 1998 as a paediatric nurse working on a respiratory ward at the Royal London Hospital and took a keen interest in Cystic Fibrosis. Since appointed as CF CNS she has been working at improving transitional care for adolescents with Cystic Fibrosis and well as promoting good communication between patients and staff. Cath has lectured jointly with Mark Butler on the course on sexual Issues of young adults.

Susan Madge

Susan is an Associate Director of Adult Cystic Fibrosis and a Consultant Nurse at the Royal Brompton Hospital. She is both adult and paediatric trained and has worked with children and adults with CF since 1984. Following a Master’s degree, Susan completed a PhD at University College, London. Her areas of interest and research include adolescence, fertility and pregnancy, quality of life and end of life issues. She is involved nationally and internationally in various aspects of CF care.

Christopher Orchard

Chris Orchard is CF and respiratory medicine consultant working at Frimley Park Hospital. He qualified form St Georges medical School in 2001 and trained in North West London in respiratory medicine. He was a research fellow for 2 years at the Royal Brompton Hospital. He has been a consultant since 2014 and as well as his interest in CF he is clinical lead for the HDU and infection control.

Catherine Owens

Dr Catherine Owens is a consultant Radiologist and Reader at the University College London and has worked at Great Ormond Street Hospital since 1996. Catherine has held many national and International leadership posts including treasurer of the European Society of Radiology 2003-2008 and is an honorary member of the American Society for Paediatric Radiology; in addition to being co-founder of the World Federation of Paediatric Imaging. Her specialist interests are cardiorespiratory radiology, radiology in cystic fibrosis and computed tomography and radiology in immunocompromised patients. Catherine has lectured nationally and internationally and has written more than a hundred peer reviewed articles and over 20 chaptures in her field.

Helen Parrott

Helen is the Associate Director of Rehab and Therapies and a CF specialist physio and has worked with adults with cystic fibrosis at the Royal Brompton CF centre since 2006. Her areas of interest are the asymptomatic adult, pregnancy and medicines for inhalation. Helen has been the chair of the International Physiotherapy Group for physiotherapists working in CF and has a keen interest in developing innovative services which promote the extended roles and expertise of the AHP. More recently, Helen has completed quality improvement work and an innovation fellowship and is using this experience to help co-design future care models with people with CF.

Marijke Proesmans

Marijke Proesmans is a consultant in Pediatric Pulmonology at the university hospital of Leuven, Belgium and associated Professor at the faculty of Medicine of the same institution. Professor Proesmans received her degree in medicine at the university of Leuven in 1992. Since 1999 Marijke Proesmans has worked as a consultant in the department of Pediatrics of the university hospital in Leuven, a large tertiary referral and teaching hospital. Her clinical expertise covers most fields of Pediatric Pulmonology including asthma, lung infections, cystic fibrosis, Primary ciliary dyskinesia, congenital lung malformation and non-invasive ventilation. Her research activities and publications are mostly clinical oriented with a strong focus on cystic fibrosis.

Nicholas Simmonds

Dr Nicholas Simmonds graduated in medicine from the University of Nottingham in 1999 and subsequently gained a doctorate from Imperial College, London. The topic of his thesis was long-term survival in CF with a focus on the factors that contribute to this, including CFTR function variability and environmental (non-genetic) factors. He was appointed as Consultant Respiratory Physician and CF Specialist at the Royal Brompton Hospital in 2010 and also holds an Honorary Senior Lecturer position with Imperial College. He continues to research determinants of long-term survival in CF, including a study of gene modifiers, and is a member of the International Study Group of Ageing in CF (ISAC). His other main specialist interest is the diagnosis of CF in equivocal or atypical cases. He has extensive experience of nasal potential difference measurement and is a member of the European Diagnostic Network Working Group. He has published widely, including original research in peer review journals, review articles and book chapters.

Alan Steel

Dr Alan Steel is a Consultant Gastroenterologist at the Royal Liverpool Hospitals, Honorary Physician at the Royal Brompton Hospital, and Honorary Senior Lecturer at Imperial College, London. Alan qualified from University College London in 1996 and undertook specialist training in Gastroenterology in North West London region. He was awarded an MD from University of London in 2009, and was consultant and governor of Chelsea and Westminster Hospital until 2017. Alan's clinical expertise is in Inflammatory Bowel Disease, GI disorders in Cystic Fibrosis, therapeutic endoscopy.

Susan Talbot

Susan Talbot worked in the Royal Brompton Hospital for 14 years in numerous areas of Respiratory medicine. In 2011 she took a post as a Clinical Nurse Specialist in Cystic Fibrosis at the Brompton which she loved, developing a special interest and expertise in quality improvement. In 2016 she moved back to her home town in Ireland and is currently a Clinical Nurse Specialist in Cystic Fibrosis/post Lung Transplant in the Mater Misericordia hospital in Dublin City.

Guy Thorpe-Beeston

Mr Guy Thorpe-Beeston is a consultant obstetrician and gynaecologist at the Chelsea and Westminister Hospital, London, and has an honorary consultant appointment at the Royal Brompton Hospital. He qualified from Cambridge University and subsequently subspecialised in fetal medicine, completing his thesis in 1991. He has a specialist interest in high-risk pregnancies and co-ordinates the obstetric care of women with cystic fibrosis.

Michael Waller

Mike has recently been appointed as a Locum consultant in cystic fibrosis at the Bart’s CF unit in London. He was awarded a PhD by Imperial College London for his thesis ‘The behaviour of the cystic fibrosis respiratory epithelium and its response to multidose CFTR gene therapy’. During his research he worked on a landmark CF gene therapy trial, and developed an interest in the electrophysiology of the CF airway using nasal potential difference measurement. He was subsequently appointed as a CF Trust senior clinical fellow at the Royal Brompton Hospital, before completing his specialty respiratory training in 2017.

Colin Wallis

Dr Colin Wallis is a Consultant Paediatrician in paediatric respiratory medicine at Great Ormond Street Hospital for Children (GOSH), joining the respiratory team in 1993. Dr Wallis has a specific interest in the care and management of children with chronic lung disease, in particular cystic fibrosis, and the child with long-term ventilatory needs, and is the respiratory representative on the GOSH NSCAG tracheal service. He is chairman of a UK working party looking at the needs of the chronically ventilated child and was awarded an NHS Health Technology Assessment grant to review the current status of paediatric long-term ventilation in the UK. He has also been awarded funding to evaluate the early changes in CF lung disease from the CF Trust together with researchers at the Institute of Child Health. He has published over 125 articles in peer-reviewed journals and is the author of several chapters in leading paediatric respiratory texts including the diagnostic aspects of cystic fibrosis.

Eleanor Willcox

Eleanor Willcox qualified as a registered dietitian in 2012, and has been working in the area of CF since 2014. Eleanor has worked at the Royal Brompton Hospital as a since July 2016 as a specialist cystic fibrosis dietitian. Eleanor is a member of the UK Cystic Fibrosis interested group, and regularly attends meetings.

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Fees will be refunded in full if cancellation is received in writing or by email at least six weeks before the start of the course.