Su Madge, Course leader
Susan trained at University College London (UCL),and Great Ormond Street Hospital, London, where she began working in CF. Following a Masters degree,Susan completed her PhD at UCL. Susan has now been working with children and adults with CF for over 25 years. Her areas of interest include adolescence,burden of care, fertility and pregnancy, quality of life and end of life issues. She is involved nationally and internationally in teaching about CF to all members of the multidisciplinary team.
Penny Agent, Course facilitator
Penny has worked at Royal Brompton Hospital since 1996 and is Deputy Director of Rehabilitation & Therapies. She has been the Lead Physiotherapist for CF for 12 years. Her specialist interests in CF include complex disease, NIV, end of life care, and airway clearance. She has lectured extensively both nationally and internationally. Penny is co-editing the revision of the national ‘Clinical Guidelines for the Physiotherapy Management of CF’.
Liz Holder, Course Administrator
Liz trained at St Thomas Hospital (London) as a Registered General Nurse. She worked at both the Royal Marsden and Royal Brompton Hospitals for many years. Her role at the Royal Brompton latterly was as a CF Nurse specialist with an interest in home care. She helped set up the Home care service for both children and adults with Cystic Fibrosis. Since leaving clinical work 10 years ago she has been involved in the administration of this course.
Speakers are experts in their fields with both national and international reputations, working at the following hospitals:
- Royal Brompton and Harefield NHS Foundation Trust
- Great Ormond Street NHS Trust
- Barts and the London NHS Trust
- Chelsea and Westminster NHS Foundation Trust
- Hammersmith Hospital – Imperial College Healthcare NHS Trust
- Kings College NHS Foundation Trust
- University Hospital Zurich, Switzerland
- UZ Leuven, Belgium
Dr Catherine Owens is a consultant Radiologist and Reader at the University College London. She has worked at great Ormond Street Hospital since 1996.
Catherine was Chief Fellow in Paediatric Radiology at the Sick Children’s Hospital in Toronto in 1993/4. She was them appointed as Consultant Paediatric Radiologist at St Mary’s Hospital where she worked until 1998. She began working part-time at Great Ormond Street Hospital in 1996 becoming full-time Consultant Paediatric Radiologist in 1996.
She has held many national and International leadership posts including treasurer of the European Society of Radiology 2003-2008 and is an honorary member of the American Society for Paediatric Radiology; in addition to being co-founder of the World Federation of Paediatric Imaging.
Her specialist interests are cardiorespiratory radiology, radiology in cystic fibrosis and computed tomography and radiology in immunocompromised patients. Catherine has lectured nationally and internationally and has written more than a hundred peer reviewed articles and over 20 chaptures in her field.
Dr Siobhan Carr is a consultant in paediatric respiratory medicine at Royal Brompton Hospital.
Siobhan graduated from St Bartholomew’s Hospital Medical School in 1988, she undertook the majority of her paediatric respiratory training at Great Ormond Street Children’s Hospital with some time spent in Sydney, Australia. She worked as the Paediatric CF Centre Director at The Royal London Children’s Hospital for over 14 years before moving to The Brompton. Since May 2013 she has worked as Consultant in Paediatric Respiratory Medicine at The Royal Brompton Hospital with a special interest in Chronic Suppurative Lung Disease in children. Her areas of expertise are Primary ciliary dyskinesia, Cystic Fibrosis, Non-CF bronchiectasis and immunodeficiency.
Siobhán has presented to national and international audiences at Cystic fibrosis conferences for many years and been involved in cystic fibrosis research including being part of the longstanding London CF Collaborative that has been investigating lung function measures and imaging techniques in children with CF since 1998.
Dr Saji Aleander is a Paediatric Diabetologist and has a major interest in paediatric endocrinology.
Saji carried out his undergraduate training at Christian Medical School Vellore India. He completed his postgraduate paediatric training in London. In 2005 he was appointed paediatric consultant in addition to being a general paediatrician.
He jointly runs a bone marrow transplant endocrine late-effects clinic at St Mary’s Hospital as well as a CF related diabetes clinic at Royal Brompton Hospital.
He is involved in audit and research activity based around his clinical work.
Dr Alan Steel has been a Consultant Physician & Gastroenterologist at Chelsea and Westminster Hospital since 2009.
Alan qualified from University College London in 1996 and undertook specialist training in Gastroenterology in North West London region. He was awarded an MD from University of London in 2009.
He is a lead for research and an honorary clinical research fellow at Imperial College.
His expertise is in Inflammatory Bowel Disease, GI disorders in Cystic Fibrosis, therapeutic endoscopy.
Fiona Cathcart has been a Specialist Physiotherapist in Adult Cystic Fibrosis at the Royal Brompton Hospital since 2010.
She began her career at Southampton University Teaching Hospital where she completed her rotations and specialised in respiratory physiotherapy.
Her special interests are pre-transplant rehabilitation, non-invasive ventilation, end of life care.
She is currently completing an MSc in Advanced Respiratory Physiotherapy at the University of Hertfordshire.
Dr Mark Rosenthal is a consultant in paediatric respiratory medicine at Royal Brompton Hospital and specialises in children’s chest problems, cough, food allergies and sleep disorders.
Mark graduated in 1981. His research interests are respiratory physiology and Cystic Fibrosis.
Mark has been invited to give lectures in many European countries, America, Japan, Peru and South Africa.
He is a visiting professor of respiratory paediatrics at the Odessa l.l. Mechnikov National University; Lviv in Ukraine; Doha in Qatar and Thessalonika Greece.
Elaine Gunn is the UK CF Registry Manager for the Cystic Fibrosis Trust.
Elaine trained as a registered nurse in 1977 and specialised in cardiothoracic surgical and respiratory nursing and worked at Wythenshaw Hospital Manchester cardiothoracic Department as a senior sister.
In 1987 she became involved in adult Cystic Fibrosis research.
Moving to Papworth Hospital in 1994 taking the post of Cystic Fibrosis Database and Research Manager.
In 2007 she left the NHS and started to work for the CF Trust as Registry Manger.
Elaine is a member of the European CF Society Data Quality Management Group, European Medicine Agency Pharmavocigilance Working Groups and teaches regularly on the National Management of CF Care Course
Mark Butler is Clinical Nurse Specialist at the London Chest Hospital.
Mark graduated as a nurse in 1995 and began working in the area of cystic fibrosis in 1999.
He has a specific interest in transition and sexual health issues in cystic fibrosis. Mark is currently a member of the Scientific Committee of the European Cystic Fibrosis Society.
Mark has lectured on the course for many years.
Gemma Stanford is a Specialist Physiotherapist in Adult Cystic Fibrosis at Royal Brompton Hospital.
Gemma graduated from the University of Brighton.
Gemma’s role includes inpatient, outpatient and community work. She has a strong interest and involvement in research.
Her areas of particular interest include musculoskeletal issues in CF, non-invasive ventilation and improving outcome measures for airway clearance.
Catherine Lambert has been a Cystic Fibrosis Clinical Nurse Specialist at the Royal London Hospital since 2005
Cath graduated in 1998 as a paediatric nurse working on a respiratory ward at the Royal London Hospital and took a keen interest in Cystic Fibrosis.
Since appointed as CF CNS she has been working at improving transitional care for adolescents with Cystic Fibrosis and well as promoting good communication between patients and staff.
Cath has lectured jointly with Mark Butler on the course on sexual Issues of young adults.
Dr Jillian Riley is course director for the MSc Cardio-respiratory Nursing at Imperial College and is an Honorary Lecturer for the Faculty of Medicine at the national Heart & Lung Institute.
Jill qualified as a nurse at University College Hospital, London, followed by a degree in education at Manchester University and an MSC in Nursing from City University. Her PhD was undertaken at Imperial.
Jill Trained in cardiac intensive care at the Hammersmith and has clinical experience working in the UK and North America. In 1998 Jill returned to the UK and took up her present post.
Jill is interested in ensuring the delivery of high quality healthcare. She has been involved in the development of the National Service Framework for Coronary Heart Disease, British Association for Nursing Cardiac Care. In addition she has served on a number of expert committees including the British Cardiovascular Society, British Heart Foundation and European Council of cardiovascular Nurse.
She has co-authored a text on cardiothoracic nursing and contributed to a number of other text books and publications.
Patricia trained in respiratory medicine on the North West London deanery and did her CF training at the Royal Brompton Hospital. Her MSc in Respiratory Medicine dissertation was on pneumothorax in cystic fibrosis. She is currently a Locum Consultant in adult cystic fibrosis and respiratory medicine at King’s College London.
Helen is the Clinical Specialty Lead for the adult CF therapies team at The Royal Brompton Hospital, she graduated from Hertfordshire University in 2002. Helen specialised in respiratory care early in her career as a physiotherapist and has been at the Brompton Hospital for 10 years developing her expertise in the management of adults with cystic fibrosis. Her special interests include the asymptomatic adult, pregnancy and medicines for inhalation. Helen is soon to be the chair of the International Physiotherapy Group for physiotherapists working in CF and in this role has a keen interest in promoting international exchange of best practice and research.
Dr Andrew Jones was appointed as a consultant in respiratory medicine and as a CF specialist at the Royal Brompton Hospital in 2013. His research interests include the pathogenesis of lung infection in CF patients, bacterial diversity and communication systems and the treatment of non-tuberculous mycobacteria”
Marijke Proesmans is a consultant in Pediatric Pulmonology at the university hospital of Leuven, Belgium and associated Professor at the faculty of Medicine of the same institution.
Professor Proesmans received her degree in medicine at the university of Leuven in 1992.
Since 1999 Marijke Proesmans works as a consultant in the department of Pediatrics of the university hospital in Leuven (Belgium), a large tertiary referral and teaching hospital. Her clinical expertise covers most fields of Pediatric Pulmonology including asthma, lung infections, cystic fibrosis, Primary ciliary dyskinesia, congenital lung malformation and non-invasive ventilation. Her research activities and publications are mostly clinical oriented with a strong focus on cystic fibrosis. The CF center of the university hospital in Leuven is part of the European cystic Fibrosis Clinical Trials network. Marijke Proesmans is member of the training committee of this network.
Dr Ian Balfour-Lynn has been a paediatric respiratory consultant at the Royal Brompton Hospital, London since 1997. He works in one of the UK's premier paediatric respiratory units, situated within one of the largest UK postgraduate specialist heart and lung centres. He is also a consultant at Chelsea and Westminster Hospital and an honorary senior lecturer at Imperial College School of Medicine.
He specialises in all aspects of paediatric respiratory medicine, namely any condition that affects a child's lungs and airways. This may manifest in a number of ways, most commonly noisy breathing (wheeze, croup), cough, breathlessness or difficulty breathing, and recurrent chest infections. He is married with two teenage children.
Mr Guy Thorpe-Beeston is a consultant obstetrician and gynaecologist at the Chelsea and Westminister Hospital, London, and has an honorary consultant appointment at the Royal Brompton Hospital. He qualified from Cambridge University and subsequently subspecialised in fetal medicine, completing his thesis in 1991. He has a specialist interest in high-risk pregnancies and co-ordinates the obstetric care of women with cystic fibrosis.
Dr Christian Benden is the Medical Director of Lung Transplantation at the University Hospital Zurich and a Reader in Respiratory and Transplant Medicine at the University of Zurich, Switzerland.
Dr Benden completed his paediatric training in Hannover (Germany) and London (United Kingdom). In addition, he trained in Paediatric Respiratory Medicine and received specialist training in lung transplantation in London and Zurich.
Dr Benden is a Member of the Board of Directors of the International Society for Heart and Lung Transplantation (ISHLT), and a former Chair of the ISHLT Scientific Council on Paediatric Transplantation. He is Associated Editor of "Pediatric Transplantation” and Editorial Board Consultant of “Journal of Heart and Lung Transplantation”.
Dr Benden's research interests include clinical aspects of lung transplantation, particularly in children and adolescents, experimental aspects of chronic lung allograft dysfunction, and cystic fibrosis lung disease.
Dr Nicola Bridges is a paediatric endocrinologist based at Chelsea and Westminster Hospital, London, and also works at the Royal Brompton Hospital and St Mary’s Hospital. She looks after children and adolescents with CF-related diabetes at the Royal Brompton, and is also closely involved in the care of adult patients with CF-related diabetes. At Chelsea and Westminster Hospital she is part of the diabetes team, and covers a wide range of paediatric endocrine disorders, with a special interest in puberty and Prader Willi syndrome.
Dr Mandy Bryon is a consultant clinical psychologist and Joint Head of the paediatric psychology and play services at Great Ormond Street Hospital for Children, London. Mandy has worked as the psychologist for the cystic fibrosis team since February 1990. She lectures extensively within the UK on psychosocial aspects of childhood illness, particularly cystic fibrosis, to professional and parent audiences. Mandy has presented to national and international audiences at cystic fibrosis conferences and is a regular advisor to the BBC on factual programmes on child behaviour, and a regular contributor to national newspapers and magazines on parenting issues.
Mandy co-founded the UK Psychosocial Professionals in Cystic Fibrosis Group and currently organises the International Psychosocial Special Interest Group for the European Cystic Fibrosis Society.
She is currently the psychosocial representative on the Medical Advisory Committee of the Cystic Fibrosis Trust. Mandy has researched in many areas of the psychological impact of childhood illness, particularly sibling relationships, adherence to treatment, attachment, eating disorders and body image disturbance in cystic fibrosis.
Andrew Bush is Professor of Paediatric Respirology, Imperial College, London; Academic Director of Paediatrics at the National Heart and Lung Institute, and Honorary Consultant Paediatric Chest Physician at the Royal Brompton Hospital. When it became clear that he had failed to inherit a single one of his father's musical talents, Professor Bush went into medicine as a more promising career. He trained at Corpus Christi College, Cambridge, and University College Hospital, London. He did his house jobs at Stafford General Infirmary(where he caused a scandal by cohabiting with his own wife) and University College Hospital, London. After SHO and registrar posts in adult medicine, he obtained an MD degree in the department of clinical physiology, as a British Heart Foundation junior fellow supervised by Professor David Denison, in the field of pulmonary circulatory physiology.
Professor Bush then moved into paediatrics, training initially at University College Hospital and Hillingdon Hospital and then training in paediatric respiratory medicine with Professor John Warner at the Brompton Hospital, and Professor Mike Silverman at the Royal Postgraduate Medical School. He was appointed Consultant and Senior Lecturer in Paediatric Respirology in January 1991, and was made Professor at Imperial College in 2002.
His research interests include the invasive and non-invasive measurement of airway inflammation in children, in particular the use of endobronchial biopsy in the management of severe asthma, and also respiratory mass spectrometry. Professor Bush has published widely within his field and holds positions on editorial boards for several prestigious journals. He has gained a wealth of experience working at hospitals around the world, including Australia and the USA.
He was appointed an NIHR senior investigator in 2011. Also in 2011, as a result of a Watergate-like conspiracy by his present and past trainees (more than 50 of whom currently occupy senior academic and clinical positions), he was awarded the Rectorís Award for Excellence in Research Supervision as well as the Rectorís Medal in Research Supervision.
Marie Creedon qualified as a dietitian in 1997 from the University of Surrey.
For the past 12 years Marie has worked at Great Ormond Street Hospital for Children, London and has a wide range of experience in paediatric nutrition. Marie has been the Principal Respiratory Paediatric Dietitian for 9 years, a role which specialises in the nutritional care of 180 children attending Great Ormond Street Hospital for their cystic fibrosis care.
Marie is a member of the UK Cystic Fibrosis interest group and the European Cystic Fibrosis Nutrition Group and is also active in audit, research and lecturing on her specialist subject both nationally and internationally.
Dr Jane Davies is a Reader at Imperial College, London in Paediatric Respiratory Medicine and Gene Therapy and Honorary Consultant in Paediatric Respiratory Medicine at the Royal Brompton Hospital.
Her clinical research interests focus on cystic fibrosis airway disease, in particular, pathophysiology and remodelling processes, bacterial infection, outcome measures for clinical trials and novel therapies. She is the clinical lead for the UK CF Gene Therapy Consortium, the site representative on the European CF Society Clinical Trials Network, a member of the Respiratory and CF Clinical Studies Group of the Medicine for Children Research Network and is the Principal Investigator for a number of small molecule drug trials at the Brompton site.
Kate Fayad is a registered dietitian with extensive experience across all areas of clinical nutrition and has worked within a diverse range of acute and community settings around the world.
She joined the adult specialist cystic fibrosis team at the Royal Brompton Hospital, London in 2008 to dedicate her expertise to cystic fibrosis. Kate has a strong ethos for hard work, dedication and delivering excellence to provide a pinnacle service to cystic fibrosis individuals. Her practice specialises in improving and optimising the nutritional status, and ultimately improving the survival of, those living with the disease.
Kate has been intimately involved with and focused on developing care guidelines and designing clinical trials to study the effects of treatment and improve the delivery of care. She has internationally participated in and presented clinical research to improve the quality of lives of those with cystic fibrosis. She recently developed and implemented care guidelines on high dose vitamin D supplementation which was internationally recognised and published. Kate is an influential member of the UK Dietitians’ Cystic Fibrosis Interest Group. She regularly attends meetings to share and contribute information to improve her own depth of knowledge and that of others.
She has a keen interest in advancing and improving cystic fibrosis care specifically focusing on the nutritional aspects and hopes to use her talent to continue to find innovative ways to fight for the future for cystic fibrosis.
Dr Nicholas Simmonds graduated in medicine from the University of Nottingham in 1999 and subsequently gained a doctorate from Imperial College, London. The topic of his thesis was long-term survival in CF with a focus on the factors that contribute to this, including CFTR function variability and environmental (non-genetic) factors. He was appointed as Consultant Respiratory Physician and CF Specialist at the Royal Brompton Hospital in 2010 and also holds an Honorary Senior Lecturer position with Imperial College. He continues to research determinants of long-term survival in CF, including a study of gene modifiers, and is a member of the International Study Group of Ageing in CF (ISAC). His other main specialist interest is the diagnosis of CF in equivocal or atypical cases.
He has extensive experience of nasal potential difference measurement and is a member of the European Diagnostic Network Working Group. He has published widely, including original research in peer review journals, review articles and book chapters.
Dr Colin Wallis is a Consultant Paediatrician in paediatric respiratory medicine at Great Ormond Street Hospital for Children (GOSH). He received his undergraduate training at the University of Cape Town and, after completing an MD degree, joined the paediatric registrar rotation at the Red Cross Children’s Hospital in Cape Town. After additional jobs in the UK, and further experience in Canada, he joined the respiratory team at GOSH in 1993.
Dr Wallis has a specific interest in the care and management of children with chronic lung disease, in particular cystic fibrosis, and the child with long-term ventilatory needs, and is the respiratory representative on the GOSH NSCAG tracheal service. He is chairman of a UK working party looking at the needs of the chronically ventilated child and was awarded an NHS Health Technology Assessment grant to review the current status of paediatric long-term ventilation in the UK. He has also been awarded funding to evaluate the early changes in CF lung disease from the CF Trust together with researchers at the Institute of Child Health.
Dr Wallis is an examiner for the Royal College of Paediatrics and Child Health and current president of the British Paediatric Respiratory Society. He has published over 75 articles in peer-reviewed journals and is the author of several chapters in leading paediatric respiratory texts.
Dr David Westaby is a gastroenterologist and hepatologist currently working as Director of Endoscopic Services and Lead for PancreatobiliaryMedicine at Imperial College, London. Qualified as a doctor at Cambridge and Charing Cross in 1976; Dr Westaby is a member of multiple organisations including the British Society of Gastroenterology, British Association for the Study of the Liver, the American Association for the Study of Liver Disease and is a Fellow of the Royal College of Physicians.
His research interests include complications of chronic liver disease, interventional endoscopy, liver pancreatobiliary and gastrointestinal complications of cystic fibrosis.